Home Forums Latest Post
English French German Italian Portuguese Russian Spanish

Login Form



Contact Us

128 East Avenue

Norwalk, CT 06851

Tel: +1 (203) 866 5000

Fax: +1 (203) 779 1000

 National Emphysema Foundation Forum
Welcome Guest   [Register]  [Login]
 Subject :Re:Smoking.. 2010-04-09 11:28:39 
Nancylala
Joined: 2010-02-08 19:05:32
Posts: 2
Location
Forum : Main Forum
Topic : Smoking

COPD is any combination of emphezyma, chronic bronchitis and/or asthma; I'm surprised your doctor didn't explain that to you better.   Sorry to hear about another member in our ranks.  There is a really good book called "Living a Healthy Life with Chronic Conditions" which I recommend you get; it will give you hope and help you cope and manage your COPD , rather than your COPD managing you.  Nancy lala

IP Logged
:)
 Subject :Re:Smoking.. 2010-04-02 08:14:34 
bbain
Joined: 2010-04-02 13:00:48
Posts: 1
Location
Forum : Main Forum
Topic : Smoking

Hi. My name is Brenda and I am 49 years old, married and have 3 sons.  On March 4, 2010 I was diagnosed with

Copd.  I have been smoking 34 years.  I was really scared so I decided to quit.  I started out by not inhaling the

cigarettes then, started weaning and I set a quit date.  One morning before my quit date I slept till noon and when

I awoke I decided if I went all morning without smoking I might as well quit.  I was three days cold turkey and I

received lozenges in the mail.  Could not see putting the nicotine back in my body after getting it out.  so now I am

off smoking now for a week.  Is Copd, the same as emphysema?  thank you

IP Logged
3
 Subject :New Lungs for Chuck.com.. 2010-03-31 05:46:41 
rugershay
Joined: 2010-03-31 10:07:11
Posts: 1
Location
Forum : Main Forum
Topic : New Lungs for Chuck.com

Has anyone else seen this on the Bonnie Hunt show?  I am sure there are others with similar problems, but this man has insurance that will only cover a small part of a double lung transplant.  He was on the Bonnie Hunt show and what a wonderful family he has.  His wife has started a fund raiser which is also a raffle for a new car and condo in Florida.  Worth the $50 I think.  If not to help him, it's your way to win a car and condo.  Only 40,000 entrants.

I hope you join in to help!!

 

IP Logged
 Subject :Re:Smoking.. 2010-03-27 21:38:29 
copdinfo
Joined: 2010-03-28 02:20:21
Posts: 3
Location
Forum : Main Forum
Topic : Smoking

Hi,

 

As a volunteer from the American Lung Association, I would like to share with you an exciting new resource for patients with COPD, called Take Control of Your COPD: A Guide to Better Living. With grant underwriting, the video is now available free of charge on YouTube. 

The 12-chapter series covers the essentials of COPD management with an emphasis on what one might learn in a full pulmonary rehabilitation program.  The chapters and speakers are listed at the end of this email.  It was created by a collaboration of COPD organizations in California to teach patients ways to control COPD, chronic bronchitis and emphysema, in order to lead long, productive, and normal lives. It is aimed toward individuals with all severity levels and stages of progression and would be a valuable resource to any COPD patient, caregiver, or provider.

For webmasters/staff: We hope that you will consider linking your website to the videos as a resource for visitors to your site.

For patients and caregivers: We hope that you will take some time to view these new educational videos!

The videos can be found at:

http://www.youtube.com/user/COPDGuide

 

 

Please email with any questions.

Thank you!

 

Emily

bayintern1_alac@alac.org

IP Logged
 Subject :Re:Welcome to the New and Improved NEF Forum Threads.. 2010-03-27 21:38:01 
copdinfo
Joined: 2010-03-28 02:20:21
Posts: 3
Location
Forum : Main Forum
Topic : Welcome to the New and Improved NEF Forum Threads

Hi,

 

As a volunteer from the American Lung Association, I would like to share with you an exciting new resource for patients with COPD, called Take Control of Your COPD: A Guide to Better Living. With grant underwriting, the video is now available free of charge on YouTube. 

The 12-chapter series covers the essentials of COPD management with an emphasis on what one might learn in a full pulmonary rehabilitation program.  The chapters and speakers are listed at the end of this email.  It was created by a collaboration of COPD organizations in California to teach patients ways to control COPD, chronic bronchitis and emphysema, in order to lead long, productive, and normal lives. It is aimed toward individuals with all severity levels and stages of progression and would be a valuable resource to any COPD patient, caregiver, or provider.

For webmasters/staff: We hope that you will consider linking your website to the videos as a resource for visitors to your site.

For patients and caregivers: We hope that you will take some time to view these new educational videos!

The videos can be found at:

http://www.youtube.com/user/COPDGuide

 

 

Please email with any questions.

Thank you!

 

Emily

bayintern1_alac@alac.org

IP Logged
 Subject :Re:Air Travel and Lung disease.. 2010-03-27 21:36:28 
copdinfo
Joined: 2010-03-28 02:20:21
Posts: 3
Location
Forum : Main Forum
Topic : Air Travel and Lung disease

Hi,

 

As a volunteer from the American Lung Association, I would like to share with you an exciting new resource for patients with COPD, called Take Control of Your COPD: A Guide to Better Living. With grant underwriting, the video is now available free of charge on YouTube. 

The 12-chapter series covers the essentials of COPD management with an emphasis on what one might learn in a full pulmonary rehabilitation program.  The chapters and speakers are listed at the end of this email.  It was created by a collaboration of COPD organizations in California to teach patients ways to control COPD, chronic bronchitis and emphysema, in order to lead long, productive, and normal lives. It is aimed toward individuals with all severity levels and stages of progression and would be a valuable resource to any COPD patient, caregiver, or provider.

For webmasters/staff: We hope that you will consider linking your website to the videos as a resource for visitors to your site.

For patients and caregivers: We hope that you will take some time to view these new educational videos!

The videos can be found at:

http://www.youtube.com/user/COPDGuide

 

 

Please email with any questions.

Thank you!

 

Emily

bayintern1_alac@alac.org

IP Logged
 Subject :climate influence on emphysema.. 2010-03-22 12:05:02 
elstarer
Joined: 2010-03-22 16:48:17
Posts: 1
Location
Forum : Main Forum
Topic : climate influence on emphysema

I'm considering moving to the southwest to feel better? My dx is moderate to severe; I live on the east coast now. Breathing is tough. Any advice? Ellen

IP Logged
 Subject :Re:Re:Smoking.. 2010-03-04 13:53:08 
Mark Bitt
Joined: 2010-03-04 19:15:59
Posts: 1
Location
Forum : Main Forum
Topic : Smoking

Please,Stop smoking and never go back to it.you have to want to quit before you start the chantex.talk to dr. about that. You have to quit.It is the most important part of you therapy.Never go back to it either.I have had a relapse after severe diagnosis and quiting.smoked again with the severe diagnosis for 6 more month.Now off again and the damage i done is now 2 fold and illiminated me for possibilitys of lvrs. trust me stop and never go back.stay strong want to quit and i will pray that it works out.You have to quit. Make up your mind to quit.Now I have all maxed out on medications inhalers and thats no prize.After that level its oxygen.I am there. Trust me quit.





[Auntiefay 2010-02-04 06:41:34]:

Is anyone else here?  I need some feedback.  I have moderate to severe emphysema and can't stop

smoking.  My lungs are swelled up and hitting my ribs.  I'm not sure where i am with this and i'm scared. 

It's a cycle...the more afraid i become the more i smoke. 

 

I am trying to quit.  Chantix was helping and then it made me deathly ill and i had to give it up.  Can

share or help me with quitting?  Thank you...  Auntiefay

IP Logged
 Subject :Curious about this.. 2010-02-26 12:52:59 
Mimi
Joined: 2010-02-26 18:34:37
Posts: 2
Location
Forum : Main Forum
Topic : Curious about this

What is it like living with emphysema?  I'm new to this and not sure what to expect.

IP Logged
 Subject :Re:Smoking.. 2010-02-26 12:50:26 
Mimi
Joined: 2010-02-26 18:34:37
Posts: 2
Location
Forum : Main Forum
Topic : Smoking

There is no magical answer to how to quit smoking.  I smoked for 40 years, and was diagnosed with  emphysema  about three weeks ago, when I was hospitalized with pneumonia and acute asthmatic bronchitis.  They put the patch on me in the hospital, and I used it at home also, until I got a rash (not caused by the patch) and couldn't use it.  The patch definately helped alot.  But here is the thing, yes I want to smoke a cigarette worse than you can imagine but I won't do it - because I want to be here for my kids for many years to come.  I guess you make a choice and stand by it.  I hope you are able to quit.  Good luck.

IP Logged
 Subject :Re:Smoking.. 2010-02-14 16:28:54 
Auntiefay
Joined: 2010-02-04 12:26:20
Posts: 3
Location
Forum : Main Forum
Topic : Smoking

Dear Nancylala,

Thank you for your response.  I took in every word of it and believe your advice is sound. 

I am much more settled, now...much less afraid.  I found a forum for smoking cessation and am working diligently, devising a plan that will work for me.  My quit date is two days away and the process is already working for me.  Thank God for you and everyone in the other forum.  So many voices of wisdom, like angels.  I am going to be alright, now, Nancylala.  I pray for your future success and for joy, love and happiness to be with you always.

I am going to leave this forum, now.  It has been a pleasure to have met you.

God Bless,

Auntiefay

IP Logged
 Subject :Re:Smoking Auntiefay.. 2010-02-08 13:37:02 
Nancylala
Joined: 2010-02-08 19:05:32
Posts: 2
Location
Forum : Main Forum
Topic : Smoking

Auntiefay - you say you are afraid, so you smoke more.  That is an excuse.  You need to quit to save your life and the quality of life you have left.  I. too, have severe to moderate copd and I quit after 25+ years because I couldn't breathe anymore.  Of course, it was too late, ciggs did their damage, but I can't imagine how bad it would be if I'd still been smoking these last 5 years.  You have to make a choice for life,  or death.  copd is the 4th cause of death by illness in the u.s. now and growing every day.  I'm not sure what you're afraid of...but if you're afraid of death or carrying around an oxygen tank, let that be your motivation.    I was as addicted as anyone- I quit cold turkey because I wanted it to be really tough.  Tough enough that I would not want to go through it again.  (And I've seen too many people just get addicted to the gum, etc.)  No crutches, no excuses...just stop buying them!  I slept through the hard times the first couple of days, after that it's just phycological.  Love yourself enough to make a choice for life, for life.  good luck to you and god bless Nancylala

IP Logged
:)
 Subject :Re:Smoking.. 2010-02-05 04:26:26 
Auntiefay
Joined: 2010-02-04 12:26:20
Posts: 3
Location
Forum : Main Forum
Topic : Smoking

Please take a moment and register so that we can all support each other, ok?  I have not found any other emphysema support support group online or offline.  As some of us, or all of us, knows, intense lonliness goes hand in hand with this illness.  Thank you for listening.  God Bless You....  Auntiefay

IP Logged
 Subject :Re:Smoking.. 2010-02-04 06:41:34 
Auntiefay
Joined: 2010-02-04 12:26:20
Posts: 3
Location
Forum : Main Forum
Topic : Smoking

Is anyone else here?  I need some feedback.  I have moderate to severe emphysema and can't stop

smoking.  My lungs are swelled up and hitting my ribs.  I'm not sure where i am with this and i'm scared. 

It's a cycle...the more afraid i become the more i smoke. 

 

I am trying to quit.  Chantix was helping and then it made me deathly ill and i had to give it up.  Can

share or help me with quitting?  Thank you...  Auntiefay

IP Logged
 Subject :Welcome to the New and Improved NEF Forum Threads.. 2009-07-20 08:49:04 
admin
Joined: 2009-07-18 07:44:15
Posts: 3
Location
Forum : Main Forum
Topic : Welcome to the New and Improved NEF Forum Threads

Feel free to post your Forum threads and messages, as you used to. All of your logins and passwords should still be the same as they were previously. We hope you enjoy your use of the NEF Forums, and wish you all the very best! --NEF

IP Logged
 Subject :Air Travel and Lung disease.. 2009-07-20 08:48:29 
admin
Joined: 2009-07-18 07:44:15
Posts: 3
Location
Forum : Main Forum
Topic : Air Travel and Lung disease

Please share your experience about traveling by airplane with oxygen devices.

IP Logged
 Subject :Smoking.. 2009-07-20 08:45:36 
admin
Joined: 2009-07-18 07:44:15
Posts: 3
Location
Forum : Main Forum
Topic : Smoking

Please post your experience with smoking cigarettes and smoking cessation

IP Logged
Page # 
Disclaimer

This is a bulletin board, like a notice board, a place for members of NEF e-community to post information and communicate with each other and provide support. The data entered on this page for dialogue is seen by other members and maybe moderated by NEF Physician. This is established to support the dialogue and the views expressed are the personal opinions of members. The NEF Physician only moderates the dialogue and it is not to be implied as medical advice.

Copyright © 2010 National Emphysema Foundation. All Rights Reserved.
Joomla! is Free Software released under the GNU/GPL License.